The last chemo treatment went well. We walked out of the hospital knowing we would have the next 2 weekends off. It's been great being at home and catching up on things. We took a trip up to the Sand Dunes last weekend and packed a picnic lunch. It was beautiful! The boys had alot of fun. This weekend we are just staying home and doing things around the house; various construction projects we've had started for awhile but don't seem to have the time to finish.
Peyton is doing very good! He actually got to go to preschool yesterday since we were home on a Friday. He's sad to miss the Fall Party at school next Friday, but we'll make sure and have a fun Halloween night planned for him!
We go back to the hospital on October 29th. We have to be there at 6:00am. Peyton is scheduled for an MRI, and then chemo right after that. Doctors also wanted us to try and work in a vision appointment after all that, but I said absolutely not. He's only 4! How much can a four year old be expected to deal with in one day? We rescheduled for November 12th. It's hard enough on him to have 2 appointments in one day, I can't imagine 3! It'll all work out, but 8+ hours at the hospital is too much for anyone......
We are feeling a bit anxious about the MRI. Not sure what to expect or when we'll be informed of the results. Guess we'll just have to wait and see......
The mountains officially have snow. Not looking forward to these trips when the weather starts getting yucky! How can it be that we are talking about snow and winter???? Bye for now.
Sheila - reading your post brought back so many memories. Thank you for stopping by my blog and for your wonderful comments. I started it so others would know they arent alone. Your boy is addorable. How for do you drive for treatments? We were really blessed and Phoenix Childrens was about 40 minutes or so with traffic. I hear ya about how many appointments they sometimes want you to pack in. wow! Good luck on the MRI. I dont think the anxiousness of an MRI ever goes away. Our Oncologist is amazing and calls us that usually that afternoon. Is Peytons vision effected at all? Sorry this is so long. ha ha lots to say! Oh by they way just curious.....how did you "stumble" across my blog? God bless you and your family on your NF journey.
ReplyDeleteSheila...just remember when the weather gets yucky...you an always and I mean always stop at our house. It's not big, but sure has enough love for your family to go around and make it comfortable.
ReplyDeleteLove ya Mandy! Thanks and we would be most comfortable at your house. We might have to take you up on that in the very near future! Can't wait to see you.
ReplyDeleteHi there!
ReplyDeleteI came across your blog one day while researching NF. I found your story so similar to ours I couldn't pass up the opportunity to chat with you! We have to travel about 4 hours to Denver for Peyton's treatments each week. Yes, the tumors are affecting his vision and it's our hope that his vision won't get any worse. Your story is an amazing one and best of luck to you and your family! Thanks for responding.....