March 15th - Chemotherapy Treatment #76
What a day we had! Friday we took Peyton in for chemo as usual. He
enjoyed some art time with Miss Pat. He loves when she's there and he
can work with her. She always has some fun projects do while the kids
get treatment. Peyton adores her and the feelings are mutual! I can
honestly say she's been one of the best parts of having to go to the
hospital each week.
After chemo we went down for Peyton's MRI. As always my stomach was in knots.....MRI days always make me nervous because we never know what news it will bring. For the past several months the MRIs have shown the tumors to be stable with no new growth. That's good news for us because it shows the chemo is at least keeping the tumors from growing. (Of course it was our hope, starting out 3 years ago, that treatment would shrink the tumors but for the most part that hasn't been the case.)
Peyton was coming out of anesthesia, when our 2 doctors came downstairs to let us know the MRI results. When the oncologist said that the MRI looked good and there were no changes, I breathed a sigh of relief. I knew we could still plan on taking a break from chemo in May. He then concluded that since Peyton has been on this latest treatment for 12 months we could stop at any point; meaning that day was his last treatment! The doctor said, "You're done!!" I started crying so hard! I didn't know what to say. I think everyone had tears! They all know what a long hard road this has been for us. But we did it! Every appointment, as a family....we did it! We were there for Peyton; showing him that as a family we are with him and we would help him get through. We are stronger because of this. We made it to the end!
Now we wait........Peyton gets a chance to recover. I can't wait to see color return to his cheeks. I can't wait for the dark circles under his eyes to go away and for his energy level to be that of any ordinary 6 year old.
We wait, watch and pray. He will have MRIs every three months. We will continue to have eye appointments every three months. Those tests will determine the next steps. If the tumors and his vision remain stable for one year, then we can breathe a bit easier. At that point we could stretch the MRIs out to every 6 months.
Peyton isn't "cured". There is no cure for NF. The tumors are still there. But we hope this is a new and different chapter in our lives. We know there will continue to be challenges along the way. That's the way it is with NF. Peyton will continue to inspire us all to do everything with a smile and a great attitude. We can handle whatever comes our way......
Thanks to everyone who follows this blog. I will continue to keep it updated as new developments happen. Thanks for the kind thoughts and all your prayers. Please keep them coming.
After chemo we went down for Peyton's MRI. As always my stomach was in knots.....MRI days always make me nervous because we never know what news it will bring. For the past several months the MRIs have shown the tumors to be stable with no new growth. That's good news for us because it shows the chemo is at least keeping the tumors from growing. (Of course it was our hope, starting out 3 years ago, that treatment would shrink the tumors but for the most part that hasn't been the case.)
Peyton was coming out of anesthesia, when our 2 doctors came downstairs to let us know the MRI results. When the oncologist said that the MRI looked good and there were no changes, I breathed a sigh of relief. I knew we could still plan on taking a break from chemo in May. He then concluded that since Peyton has been on this latest treatment for 12 months we could stop at any point; meaning that day was his last treatment! The doctor said, "You're done!!" I started crying so hard! I didn't know what to say. I think everyone had tears! They all know what a long hard road this has been for us. But we did it! Every appointment, as a family....we did it! We were there for Peyton; showing him that as a family we are with him and we would help him get through. We are stronger because of this. We made it to the end!
Now we wait........Peyton gets a chance to recover. I can't wait to see color return to his cheeks. I can't wait for the dark circles under his eyes to go away and for his energy level to be that of any ordinary 6 year old.
We wait, watch and pray. He will have MRIs every three months. We will continue to have eye appointments every three months. Those tests will determine the next steps. If the tumors and his vision remain stable for one year, then we can breathe a bit easier. At that point we could stretch the MRIs out to every 6 months.
Peyton isn't "cured". There is no cure for NF. The tumors are still there. But we hope this is a new and different chapter in our lives. We know there will continue to be challenges along the way. That's the way it is with NF. Peyton will continue to inspire us all to do everything with a smile and a great attitude. We can handle whatever comes our way......
Thanks to everyone who follows this blog. I will continue to keep it updated as new developments happen. Thanks for the kind thoughts and all your prayers. Please keep them coming.
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